Kourtney

From being born into a family with Kristi already navigating the challenges of Rett syndrome, Kourtney’s story is one of dedication, loss, and profound love. Kristi was born in 1965 with a rare neurological disorder that affects primarily girls, which led her to lose many of her early developmental skills between 6 and 18 months old. The disorder wasn’t formally diagnosed in the United States until 1986, so for the first 21 years of Kristi’s life, the family had no name for what she was living w...